Sickle cell in Africa Patient Parent Network Conference 2020

Sickle cell in Africa Patient/Parent Network (SCAPPN) is a unique African Network initiative formed by Sickle Cell and Young Stroke Survivors (SCYSS) as a result of its working for over 14 years in the UK and in Africa. As a Patient/Parent-led charity, SCYSS has recognized that tangible change will only happen when a network of grassroots, community-based charities and non-governmental organisations from every part of Africa come together with one strong voice. In Africa, we see that Sickle cell care and representations are overshadowed by Clinicians and Health professional, Patients are empowered to ask questions and the ‘trust me, I am a doctor’ apothegm subdues those who want to ask. SCAPPN will like to facilitate two-way communication that will empower people to ponder, question and debate the key issues about sickle cell in Africa, how different it is managed and look at what a Sickle cell cure in Africa will look like. We are now a group of 10 countries and 38 NGO's and would like to hold the 1st ever Sickle cell Patient Parent Network Conference in August 2020 in Uganda.