Sca Fell Summits Challenge

So earlier this year we found out that Tiana has been diagnosed with an incredibly rare condition of PDHA1 (PDH Deficiency). PDH Deficiency can affect all children differently, with most children passing away during childhood, amazingly there is an almost 30 year old supported by The Freya Foundation which is incredible and gives us hope. It’s absolutely shattered our hearts BUT to try and stay positive. Tiana turns 13 this year so she is already smashing things and what an amazing girl she is. We found the Freya foundation who have been lovely in helping us understand about it and due to the lack of knowledge, studies and information we want to try and help the Freya foundation with funding to get more information, more help and hopefully more chance of finding a diagnosis. My challenges have already started and will consist of the following: on 8th July I climbed Sca Fell Pike the highest mountain in England with 47.5kg on my back which is Tiana's weight (44.5kg plus kit). On the 19th July myself and several friends will be running 50km from Tyne Green park to Sunderland. Then the big one at the end of September I’m going to summit and descend Sca Fell Pike 13 times consecutively in tribute to my princess turning 13, around 75 miles distance and around 40,000ft of elevation up and 40,000ft down which is the equivalent of climbing and descending Mountain Everest from sea level almost 1.4 times. There will be several other challenges and lots of fundraisers. I would love if everyone can give the page a share, give the Freya foundation page a like and follow, and if you can feel free to donate. It means the world, honestly