Impact Guru - Spinal Muscular Atrophy (SMA) CARE FUND

This project aims to provide financial aid to patients in India, suffering from Spinal Muscular Atrophy (SMA), Impact Guru identifies these patients who need financial support for their Hospital Expenses, and supports them through crowdfunding and raising grants. Spinal Muscular Atrophy (SMA) is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle). Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease. SMA is muscular because its primary effect is on muscles, which don’t receive signals from these nerve cells. Atrophy is the medical term for getting smaller, which is what generally happens to muscles when they’re not stimulated by nerve cells. SMA involves the loss of nerve cells called motor neurons in the spinal cord and is classified as a motor neuron disease, which affects the movements of the patients from one place to other, which makes them dependent on their family members, friends, or guardians for any movements. However, today exists an approved cure for these patients’ conditions, SMA Type 1, a drug named ZOLGENSMA, which can give her a new lease on life. Unfortunately, the drug cost is INR 17,50,00,000, close to USD 1.7 Million which is way too high for anyone to bear, so Impact Guru is helping them raise funds.